MPowering The State

Partners

PATIENTS partners with the following organizations to engage patients in research.

Patient Communities

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PatientsLikeMe

PatientsLikeMe® is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services and care. With more than 250,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 40 peer-reviewed research studies. More information is available at www.patientslikeme.com.

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Mt. Lebanon Baptist Church

Established over 90 years ago, the congregation at Mount Lebanon Baptist Church boasts several hundred members and has been a long-time partner and recruitment site for Dr. Mullins’ PCORI-funded research. Its vision is to be the Christian staple of the greater Mondawmin and Baltimore City area by hosting ministries that matter, changing lives for the better, and giving hope and providing opportunities for people to have a life abundant in quantity and superior in quality.

Healthcare Providers/Systems

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Bon Secours Baltimore Health System

Bon Secours Baltimore Health System serves the West Baltimore Community with a comprehensive array of programs and services including a 107-bed acute care hospital with medical and surgical services. The approach to community health by the catholic based system, reaches beyond the traditional model of health care, caring for patients and communities holistically with traditional acute care services, as well as an array of ambulatory and community services. Bon Secours also offers wellness programs and classes that address a variety of medical and social needs.

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Association of Black Cardiologists (ABC)

Established in 1974, ABC is a nonprofit organization with an international membership of 2,500 health professionals, community health advocates, and corporate and institutional associates. The organization is dedicated to eliminating disparities related to cardiovascular disease in all people of color. It is fully accredited by the Accreditation Council for Continuing Medical Education (ACCME) to champion the elimination of cardiovascular disparities through education, research and advocacy, and a philosophy of good health.

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University of Maryland Medical Center (UMMC)

The University of Maryland Medical Center is an 800-bed teaching hospital in Baltimore and the flagship institution of the 12-hospital University of Maryland Medical System. As a national and regional referral center for trauma, cancer care, neurocare, cardiac care, women's and children's health and physical rehabilitation, UMMC treats patients who are referred nationally and regionally for expertise in time-sensitive critical care medicine. UMMC also has one of the largest solid organ transplant programs in the country, performing more than 400 abdominal and thoracic transplants a year. All physicians on staff at the Medical Center are faculty physicians of the University of Maryland School of Medicine.

Research Communities

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Center for Medical Technology Policy (CMTP)

The Center for Medical Technology Policy (CMTP) is an independent nonprofit dedicated to developing a health care system where patients, clinicians, health care policymakers, and payers have the evidence they need to make informed health decisions. We convene and collaborate with a national and international network of thought leaders, patients, patient advocates, clinicians, policymakers, and payers. Together, we support the next generation of clinical research. We do this by providing methodological guidance, shaping health policy solutions, and transforming clinical research.

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Westat

Westat is a full-service research corporation with an established reputation for quality research and a broad range of capabilities in statistical surveys, program evaluation, technical assistance, epidemiologic studies, clinical trials, and information technology.

Westat is a leader in designing and administering surveys and providing consulting services and research to meet client requirements. Founded in 1963, Westat has effectively conducted research studies in a wide range of subject areas including health, education, social services, transportation, housing, energy, the environment, human services, military human resources, and science and technology.

Drawing on its evaluation expertise and experience in patient-centered research, health IT, and community health, Westat supports PATIENTS by guiding the process for collecting, analyzing, and disseminating actionable information, tools, and resources that are useful to researchers and partners.

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UM Supporting Contributors

More than sixty University of Maryland researchers with expertise in various PCOR methods support the PATIENTS program. You can explore who they are here.